On a break

Yes, that is a Friends reference. After I took part in the Ehlers-Danlos Society’s Awareness Challenge, I went pretty quiet for a couple months. The reason I wanted to use: “I needed to focus on my family.” In reality, I unconsciously shut down my ability to be vulnerable publicly. It’s almost as if my brain …

My Diagnostic Journey

My mom sweetly calls me her problem child because since day one I was a medical diagnostic failure. Dozens of doctors listened to my symptoms and referred me to the next specialist. After many years I gave up trying to understand. No matter how much I wanted to believe in doctors, there’s only so many …

How to Cope with EDS

In 2020 I was diagnosed with hEDS and Fibromyalgia. That answer wasn’t good enough for my lifetime of issues so I didn’t accept it until months later. Part of the process has been understanding how to cope; how to deal with the day-to-day. I’ve read countless posts on Facebook and Reddit about what works for …