Words to Parents

After reading endless stories of how injuries during normal childhood have followed those with EDS, I am now more appreciative of my mother’s over protection. One of the things I’ve seen with EDS is that once you start having surgeries for issues, you don’t stop. It becomes surgery after surgery. There are many people who …

My Diagnostic Journey

My mom sweetly calls me her problem child because since day one I was a medical diagnostic failure. Dozens of doctors listened to my symptoms and referred me to the next specialist. After many years I gave up trying to understand. No matter how much I wanted to believe in doctors, there’s only so many …