A Day with EDS

“A day with EDS.” The idea of describing this makes me want to protect everyone I know from the discomfort. I don’t want people to feel bad for me; I don’t want to be associated with this condition. I don’t want people to be uncomfortable. That’s where I stop myself, because when we’re comfortable all …

My Diagnostic Journey

My mom sweetly calls me her problem child because since day one I was a medical diagnostic failure. Dozens of doctors listened to my symptoms and referred me to the next specialist. After many years I gave up trying to understand. No matter how much I wanted to believe in doctors, there’s only so many …

How to Cope with EDS

In 2020 I was diagnosed with hEDS and Fibromyalgia. That answer wasn’t good enough for my lifetime of issues so I didn’t accept it until months later. Part of the process has been understanding how to cope; how to deal with the day-to-day. I’ve read countless posts on Facebook and Reddit about what works for …