On a break

Yes, that is a Friends reference. After I took part in the Ehlers-Danlos Society’s Awareness Challenge, I went pretty quiet for a couple months. The reason I wanted to use: “I needed to focus on my family.” In reality, I unconsciously shut down my ability to be vulnerable publicly. It’s almost as if my brain …

Words to Parents

After reading endless stories of how injuries during normal childhood have followed those with EDS, I am now more appreciative of my mother’s over protection. One of the things I’ve seen with EDS is that once you start having surgeries for issues, you don’t stop. It becomes surgery after surgery. There are many people who …

A Day with EDS

“A day with EDS.” The idea of describing this makes me want to protect everyone I know from the discomfort. I don’t want people to feel bad for me; I don’t want to be associated with this condition. I don’t want people to be uncomfortable. That’s where I stop myself, because when we’re comfortable all …