Ask most people who choose to live in a bus what their reasons are and you will find a lot of similarities. Quality of life, getting to see and experience new places, and freedom are on most lists. These are just as important to me, and possibly more so as someone choosing this lifestyle as …
Yesterday afternoon we went to take a walk on the Centennial Trail just outside of the Black Hills and accidentally ended up hiking a small mountain. How this happened: the trail went either straight through fields of grass or up through a forest. I love trees and am allergic to grass. We quickly realized we …
For the last four and a half years I have lived on and off the road in a converted school bus. I also have a handful of conditions that make me a spoonie (an individual, normally with chronic illnesses, who must ration their energy [spoons] throughout the day due to a lack of energy). Every …
Whether it be movies, books, or social media, we are inundated with the attraction of being a badass. It might be the quiet, humble hero or the “genius, billionaire, playboy, philanthropist.” We look to these people because they are confident in who they are and they make a difference. My stepdaughter’s first swear word was …
Yes, that is a Friends reference. After I took part in the Ehlers-Danlos Society’s Awareness Challenge, I went pretty quiet for a couple months. The reason I wanted to use: “I needed to focus on my family.” In reality, I unconsciously shut down my ability to be vulnerable publicly. It’s almost as if my brain …
A couple months ago I introduced my husband to the Beautiful Strength Bus Instagram page because I loved their mission: Celebrating the resilience of the human spirit through the power of conversation and photography. They’re doing this while traveling around the U.S. in a school bus. I wanted to meet these people someday. Turns out …
After reading endless stories of how injuries during normal childhood have followed those with EDS, I am now more appreciative of my mother’s over protection. One of the things I’ve seen with EDS is that once you start having surgeries for issues, you don’t stop. It becomes surgery after surgery. There are many people who …
A few weeks ago I bought a head of garlic; not surprising, I cook with garlic almost every day. It was the most perfect looking head of garlic I had ever bought. Multiple people commented on its beautiful qualities and it became very popular in our household (we’re weirdos, I know). When I broke it …
You might be wondering why on earth someone with chronic pain would opt for a school bus over an RV. RVs are built for comfort and convenience. After all, they have to be appealing to those who would rather be home. So why go the not-so-easy route? The fun reason is that we like being …
When I was diagnosed with hEDS, one thing hit me harder than anything else: I have one shot. While some people can make the choice for healthy living at most points in their life, for someone with Ehlers-Danlos Syndrome, every moment counts. The more we delay, the more we suffer later. As a small business …